Tags: support

You can continue to support NAF when shopping at Schwan's

Link: https://www.schwans-cares.com/campaigns/18377-research-education-and-support-for-ataxia

Recently, there had been a fundraising campaign where Schwan’s was donating 20% of purchases made from January 30th, 2015 to March 16th, 2015 to NAF (National Ataxia Foundation) for research, education and support for Ataxia.

I had intended for years and years, about sometime after I had moved away from where one of my friends drove for them. But, I just never worked up to doing it. But, now that I’m less mobile, it seems my freeze has become somewhat bare and there are other things I wish I had on hand, but never seem to get. Though I had done frozen food by UPS from other online places in the past, but those places have come and gone.

So, I had every intention of placing an order before the NAF conference, but as time past….I ran out of time. Wasn’t sure how long it ran after the conference, but intended to do it first thing….though when I saw that I had until March 16th, I didn’t feel as rushed. Except life continued to happen, and suddenly found myself forcing myself to finally do it on March 15th.

Just moments ago, I was curious to see how the campaign ended….since the goal was to raise $5000, and before my order it was only $270…guess it came to a bit under $300. But also found this note:

You can continue support NAF when shop with Schwan’s

Thank you for your support of this campaign! NAF’s fundraising campaign period for the “Research, Education, and Support for Ataxia” has ended but NAF will continue to earn 5% until January 30, 2016. You can continue support NAF when shop with Schwan’s through this campaign page. Your continued support is very appreciated!

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Sleep Disorder Support Group at K-State?

Link: http://www.kstatecollegian.com/news/student-learns-to-juggle-disability-college-life-1.2210101

At some point after my diagnosis for Obstructive Sleep Apnea and my continuing problems that seemly too perfect CPAP compliance didn't solve, I wondered about the existence of a support group in town.

Eventually I found the AWAKE group, but that doesn't meet very often or regularly.

Then I started to wonder if there was or could be a support group at Kansas State University...not sure if that was before the word Narcolepsy was raised with me....

But, then the article linked above ran in the K-State Collegian...and in the comments to the article was the thought of a sleep disorder support group for K-State. So, I decided to send Megan Reynolds an email about the possible formation of such....along with a bit of my plight :)

The idea got tossed around, we talked about meeting, but neither happened before the end of the semester. And, I wasn't sure about bring it back up in the fall. But, things happened. I've been meeting people online, learning more and more about the subject, and then I was contacted via the NRG side of this site about whether there is a sleep disorder support group in the area. And, then that prompted me to bring it up again.

During the early exchange, Megan had said that she wanted to meet me....but I'm shy, so I avoided that part &#59;) But, yesterday I get a call...she's looking for me. And, I went ahead and said where my office is (co-workers commented that I shouldn't have done that :p ) But, we finally met. At least I'm pretty sure we did.

So, I finally made the trip over to Disability Support Services to make my interest known, and maybe further the possibility of the group happening. Perhaps something will come to be later this fall. Fingers crossed.

Not sure what the time frame is for me finding out why I still have most of the symptoms I had before CPAP, along with a bunch that I had forgotten that I had. That the seeming perfect resuls of being on CPAP....