Pretty much ever since I started CPAP, I've had a problem with pressure sores on the back of my head (could be in part due to a problem with seborrheic dermatitis or something affecting the same region....I did have a massive cyct that was just below hairline removed the summer before OSA dx. Yet another procedure where I was given a local, but ended up completely out and waking was difficult...)
But, virtually every mask on the market insists on using the same spot as a contact point. Some masks are more tolerant though on the strap not being placed there.
Pretty much there is only one mask on the market that solves this headgear issue. The CPAP Pro from http://www.nomask.com.
The problem is that its a pricey mask and it never came up with my DME...though it could just be that its not from one of the big vendors that they carry a selection of and I don't know if I could get them to get it for me or not. And, insurance would pay 100%, so it would've made sense to get it....except for the DME's rigid 6 month rule, and I had gotten a new backup FFM last winter to use a few times. While my nasal pillow mask is pushing 1 year....I did in fact order a replacement -- as referenced in "I did something amazing this morning".
While doing that post, I had researched CPAP PRO some more, and signed up for their email list....where the next day they sent me a limited time offer to get one for $119. But, since I had just gotten the new Bravo II, and I was waiting for late March to inquire if DME would....
Meanwhile, I got an email on February 28th, announcing that "Headgear has just Become a Think in the Past".... Introducing the TAP PAP Nasal Pillow Mask! CPAP.com has it for $129, including shipping and return insurance. And, it comes with all size pillows. While CPAP PRO comes with 'standard' size pillows which they say fits 99%. But, past experience usually puts me in the 1%.... have to call them to get smaller or larger, should that be necessary.
So, in my mind I had a plan that I would wait until the next Discover cycle to order the TAP PAP and next DME visit to see about the CPAP PRO...and see which works. Thinking the one I get from DME, I'm going to keep whether it works or not.....'cause before TAP PAP, the plan was to make it work no matter what.
But, then yesterday I noticed that I had gotten an email the day before titled "CPAP PRO $99 Sale"....I thought about seeing if still worked....or waiting to next week, when I might stop at DME after getting my bi-weekly shot. Though a few days ago the sore on my head got really bad that I need to sleep in a different position and mask doesn't stay put in that position and... and...
I've been having trouble with getting packages delivered to my home for some reason lately....recently found out that apparently, they've been leaving my packages outside at the wrong address...where the unit in that condo building was vacant for the last part of January and seems to be getting work done to it now.
Two deliveries lost, that I know of. Since I get other deliveries without notice, I might not know that I'm missing something. In the first case, I got an email from UPS Surepost saying the package had been delivered by the post office...but I got nothing. The second time, was for CPAP supplies from CPAP.com, so I was tracking its progress. When it showed up, I wasn't home so they left a note. I asked for it to be redelivered, but nobody showed up with it. Later I found it to be marked as delivered. After calling USPS to find out where it is....I got call from supervisor saying the carrier came to my address, knocked and left it. But, nobody knocked on my door at the time in question.
And, I was sitting by the door at the time in question....I was on the phone for the February Midwest Narcolepsy Support Group meeting, which ran past 12pm.... so couldn't get supervisor to explain why there was no knock. The next day, a UPS delivery person mentioned that he had seen packages for me left at another address, said I should go check it out. There wasn't anything there....but since then I found another person that confirmed that packages were being left there. Hinted that if they hadn't been picked up by somebody else, they might have gotten hauled off the dump with the construction debris that had been piling up by the door.
Fortunately, two shippers that I know of, agreed to send me replacement shipments. The first wanted a different address to send the shipment to, so I provided them with my UPS Store address. That might take a while to get, since I originally ordered the item on January 4th, and it didn't ship until January 17th and allegedly get delivered on January 23rd...it was surely too large to fit in parcel locker.... It was one of those special purchase sites, for greatly discounted one day sale...so I'm surprised that they would replace the order. CPAP.com chose to resend using the same method to the same address. It arrived yesterday, and apparently after 5pm (5:05pm), but I wasn't home, since I aim to catch the 5:38pm bus home....and in general typicality it was running late. I thought about requesting redelivery...for Wednesday, since I had plans for this afternoon, and didn't want to risk wasting the whole day waiting for a no show again, etc. Plus I only sent an email about what I found out last night, so I don't know if they would've done anything to fix it yet.
After some thought though, I decided that what I might attempt to do, is get up early on a weekend....which is challenging, since I'm still sleeping on Daylight Saving Time. Doesn't help that I spent 8 nights on PST and 4 nights on MST...where not changing my CDT sleep schedule fit with sleeping in those time zones. Not sure what kind of schedule I'm going to sleep on when I spend some more time in PST.
And, be really early...and try to catch the 9:02am bus to the mall....get a haircut, do some shopping, indulge in a Smashburger, before visiting the post office before it closes at noon on Saturday. (M-F 8:30-4:30 and S 9:30-12:00). Well, I slept in a bit, and things moved slower in some areas than expected. In the end I missed, in it taking longer than expected to find two matched socks.
So, I opted to catch the 10:02am bus. It was running a touch late....and after the student union it was packed...people got left behind packed. Large groups of students going to Dillons East on Saturady.... So, I got off at the mall, got a aircut, did a little shopping before and after...and then decided to go to the post office to get my package before deciding if I would either do SmashBurger or catch the next bus home. There was quite the wait at the post office, I guess I don't know what its like, since its been more than 5 years since I was there. And, the last time was to renew my passport.
When, I came out it was about 20 minutes before the 11:30am bus back home....I didn't really want to be carrying the package around and didn't feel like I would enjoy having not enough or too much time at Smashburger either way. So, I waited for the bus to show up and ride it home. It was a pretty empty bus....2 people the whole way back...and then there was one.
So, home before USPS would typically show up...and there's some packages that should arrive today...so I can wait and see if those arrive correctly.
Okay, I called to make an appointment with my doctor this morning, and he had a time of 9:45....so in I went.
He came in telling me that I had failed my sleep study. Quickly went over the detailed findings from the sleep study, gave me a hand out (after spending sometime discovering that only one printer was now visible from his computer and it was out of toner, and then some time to resolve that). Then, he wrote me a couple of scripts and told me of some of nearby places I could get the DME order filled out.
I went with the one nearest my home (and on the way home from the doctor's office).
They/RT could see me right away. RT handed me the equipment, went through its use and care. They were out of stock of the heated humidifier though, so that should be in in a couple of days...though perhaps later due to the holiday. And, then another person explained billing etc.
They are going to submit a bill of like $2030 for everything (though it might be lower in the end due to whatever the insurance company dictates as write off). But, they explained that my insurance until the end of the year is $5000 for DME, $1000 co-insurance max (of which I still have ~$785 to go)....and that it is 90/10. I'll get a bill for whatever 10% works out to be.
Wonder if I can use next year's FSA towards the co-insurance portion of the purchase? This is my first year trying out FSA, and I already think I should've put more aside.
Have a follow up with my doctor in 3 months, unless I have trouble before then.
I asked to have a copy of the sleep study results....guess I have some reading to do tonight.