Category: "Other Health Issues"

I did something amazing this morning

I've been having trouble with getting packages delivered to my home for some reason lately....recently found out that apparently, they've been leaving my packages outside at the wrong address...where the unit in that condo building was vacant for the last part of January and seems to be getting work done to it now.

Two deliveries lost, that I know of. Since I get other deliveries without notice, I might not know that I'm missing something. In the first case, I got an email from UPS Surepost saying the package had been delivered by the post office...but I got nothing. The second time, was for CPAP supplies from CPAP.com, so I was tracking its progress. When it showed up, I wasn't home so they left a note. I asked for it to be redelivered, but nobody showed up with it. Later I found it to be marked as delivered. After calling USPS to find out where it is....I got call from supervisor saying the carrier came to my address, knocked and left it. But, nobody knocked on my door at the time in question.

And, I was sitting by the door at the time in question....I was on the phone for the February Midwest Narcolepsy Support Group meeting, which ran past 12pm.... so couldn't get supervisor to explain why there was no knock. The next day, a UPS delivery person mentioned that he had seen packages for me left at another address, said I should go check it out. There wasn't anything there....but since then I found another person that confirmed that packages were being left there. Hinted that if they hadn't been picked up by somebody else, they might have gotten hauled off the dump with the construction debris that had been piling up by the door.

Fortunately, two shippers that I know of, agreed to send me replacement shipments. The first wanted a different address to send the shipment to, so I provided them with my UPS Store address. That might take a while to get, since I originally ordered the item on January 4th, and it didn't ship until January 17th and allegedly get delivered on January 23rd...it was surely too large to fit in parcel locker.... It was one of those special purchase sites, for greatly discounted one day sale...so I'm surprised that they would replace the order. CPAP.com chose to resend using the same method to the same address. It arrived yesterday, and apparently after 5pm (5:05pm), but I wasn't home, since I aim to catch the 5:38pm bus home....and in general typicality it was running late. I thought about requesting redelivery...for Wednesday, since I had plans for this afternoon, and didn't want to risk wasting the whole day waiting for a no show again, etc. Plus I only sent an email about what I found out last night, so I don't know if they would've done anything to fix it yet.

After some thought though, I decided that what I might attempt to do, is get up early on a weekend....which is challenging, since I'm still sleeping on Daylight Saving Time. Doesn't help that I spent 8 nights on PST and 4 nights on MST...where not changing my CDT sleep schedule fit with sleeping in those time zones. Not sure what kind of schedule I'm going to sleep on when I spend some more time in PST.

And, be really early...and try to catch the 9:02am bus to the mall....get a haircut, do some shopping, indulge in a Smashburger, before visiting the post office before it closes at noon on Saturday. (M-F 8:30-4:30 and S 9:30-12:00). Well, I slept in a bit, and things moved slower in some areas than expected. In the end I missed, in it taking longer than expected to find two matched socks.

So, I opted to catch the 10:02am bus. It was running a touch late....and after the student union it was packed...people got left behind packed. Large groups of students going to Dillons East on Saturady.... So, I got off at the mall, got a aircut, did a little shopping before and after...and then decided to go to the post office to get my package before deciding if I would either do SmashBurger or catch the next bus home. There was quite the wait at the post office, I guess I don't know what its like, since its been more than 5 years since I was there. And, the last time was to renew my passport.

When, I came out it was about 20 minutes before the 11:30am bus back home....I didn't really want to be carrying the package around and didn't feel like I would enjoy having not enough or too much time at Smashburger either way. So, I waited for the bus to show up and ride it home. It was a pretty empty bus....2 people the whole way back...and then there was one.

So, home before USPS would typically show up...and there's some packages that should arrive today...so I can wait and see if those arrive correctly.

Full story »

I got an Eye Exam

So, since my Narcolepsy Diagnosis, I've been having vision problems...since September. I suspected that some of it was due to my medication, and I did find that I was right...but learned from Facebook before the NN Conference in October that what I was experiencing was more associated as a side effect of my stimulant than the other. I might be starting too strong with it in the morning.

Making a change on that front, brought about an almost immediate improvement....and while at the conference, I learned of another thing to adjust and that also made for a pretty quick improvement.

However, I still felt that my prescription had changed...but didn't feel like I could get an eye exam and new glasses done in time for LISA, so I put it off....except I guess I put it off too long...because I finally got the eye exam today....but, I'm off to Gallifrey One next week. Not enough time to get a new pair of glasses. Manhattan, KS needs an 1 hour place....though do they do computer progressives in an hour? No, I need my own time machine.

For the progression...see "The Result of my Latest Eye Exam"

And, then after the eye exam, the doctor remember that I had done poorly in the upper left quadrant of my left eye in the peripheral vision test, and that he would see how I did to see if there is concern.

I again did poorly in that area. Said this kind of thing usually points to Glaucoma, but my eye pressures are perfect so that doesn't. So, he's not sure still...though he did notice in the up close exam of my eyes that my left eyelid does hang longer than my right, so maybe that's impeding my ability to see in that quadrant. But, he recently got this new machine that can quickly determine if it is and he had checked my insurance and saw that I had met my deductible. (Getting my Xyrem refilled on Jan 2nd, made me meet my $2500 deductible really quickly....and it didn't hurt as much as I thought it would either...) So, the extra test would be full covered. The normal eye exam portion is covered 100% and not subject to deductible....as are other defined preventive exams....

Meanwhile, I'm wondering if a pair of prescription sunglasses will work into my plan this year? Since the change is much, and given how I bought 3 new pairs of glasses last year....and only have the one pair. I should have a spare.

Perhaps, I might revisit Transition lenses again... for one of the pairs.... :hmm: Though so far I haven't made any use against my limited use FSA, which I had considered lowering, but in the end had kept at the same level of funding this year.

But, first how will I get by at Gallifrey One.... guess we shall see... :roll:

Almost had to test the trip protection on latest flight

Last night I had a trip that almost put to the test the trip protection insurance that I get automatically whenever I charge an airplane ticket to my American Express card. I went to bed early last night, so try to get full benefit of my sleep medication while still getting up at 3am for the 6:10am flight out of Manhattan.

I got up about 11pm, to go to the bathroom and take my next dose, when I got wobbly and thought I had braced myself on wall between to doorways, but I didn't realize that I while I was against that wall I was still falling forward until my head whacked into the door jamb. And, I hit it really hard and it really hurt. Though after that I was more awake than I had been in a while. (Last time was probably when I broke my foot....)

I could feel a bump forming on my head...but, I still did what I had gotten up to do and went back to bed and took my next dose. Though I lay there wondering if I shouldn't have or whether I would wake or if I should get my head checked out or something. Would I get Black Car to take me to hospital in the morning instead of airport? Eventually these things cleared my mind and I was able to get back to sleep.

Next morning things were feeling ok...so I finished off my packing, and after repeated passes by the mirror...I finally looked to see what kind of bump/mark there was on my head. Didn't look too bad. As I was leaving the near to last thing was packing my CPAP mask. I did make a special effort this time to make sure I had packed my pillow alarm.

And, then I was off. During the frenzy, I kept thinking to myself that I should pick up smartphone for foursquare checkins and such. But, half way to the airport, I realized that I had forgotten my smartphone. So, no foursquare checkins this trip. Guess it'll have to be some future trip before I log an out of country checkin. Probably just as well. These days the smartphone is more of a nuisance than a convenience...especially the foursquare app. Which is why I stopped using foursquare for a long stretch last time.....

I still have a couple other phones with me, so its not like I'm unreachable by those who would need to reach me during the trip. Though I'll probably miss notifications by email...since I don't know how much I'll fire up a regular email client during the trip.

Guess the important thing is that I'll still make it up to Calgary for my mother's 70th birthday.

Though this has got to be the last time I ever do this. I'm getting tired of going on trips to places where the weather is worse (colder) than where I'm starting.

Latest new problem -- Peripheral Neuropathy

So, last week I had a routine follow up appointment with my Neurologist with Sleep Medicine specialist. In preparation for the appointment, I had three issues that I've been having that I wanted to bring up. And, taking one of the suggestions from "Strategies & Techniques to help the Doctor help you", the last session I attended at the recent Narcolepsy Network Conference, I mentioned two of them to the nurse as I was getting settled in the exam room.

When doctor first came in, he asked a total irrelevant question, which I answered ("yes"...of course, I'm doing that as part of everything so that I can get quality sleep at night, what do you think I've been coming here for.) To which he said was good. As if its the only thing he cares about with respect to my sleep, but it wasn't. But, that's why I have a different specialist for my sleep problems...the Narcolepsy/Cataplexy dx which he didn't acknowledge in the appointment.

Then, he looked at the what the nurse had written and asked what he had me on for my tremor. I'm on Nadolol, he asked if it was 40mg. No, you have me on 20mg. Well, then you should be on 40mg. I'll write you a new script. Back when I lived in Dublin, Ohio and was seeing a Neurologist for it...he had me on 40mg of Nadolol.

Next thing I had mentioned was the tingling that I have all the time in my right leg. And, occasionally in other limbs. This led to wanting to schedule an EMG, which could either be done right away or later in the day depending on scheduling for the EMG. Well, I had taken the whole day off from work, so that wouldn't be a problem....except I had heard horror stories about how he did EMGs.

Well, there was time before the next scheduled EMG, so I was taking next door to strip and gown up for it. And, then the testing started. The shocks were tolerable at the beginning, though the conclusion was that there was significant neuropathy in my right leg. And, then he continued to shock it repeatedly as if trying to get the result to be normal or just to keep doing it, to get a reaction out of me. Then the muscle part....just flick the needle into my leg randomly, not care if he drew blood, etc. That last part was more painful. The result was normal for that at least. The next few days after that I had problem with cramping in my legs though.

The end of the visit, was to schedule a followup in a month and have me under go a whole bunch of (blood) tests, including a glucose tolerance test.

Pages: 1· 2

Health IT Is a Small, But Significant Part of Health Reform

Link: http://mashable.com/2012/06/29/health-it-health-reform/

I’m finding all sorts of things that I have already been diagnosed with, but nobody had ever thought to tell me before….