Category: "Essential Tremor"

March is Essential Tremor Awareness Month

Link: http://www.essentialtremor.org/National-Essential-Tremor-Awareness-Month

In late December 2010, the U.S. House of Representatives officially designated the month of March as National Essential Tremor Awareness Month. We invite you to get involved in helping us raise awareness in communities throughout the U.S. and abroad. With 10 million Americans alone affected by this life-altering condition and a general lack of public understanding, we need your help to spread the word.

What is Essential Tremor?
Also known as familial tremor, benign essential tremor or hereditary tremor, essential tremor (ET) is a progressive neurological condition that causes a rhythmic trembling of the hands, head, voice, legs or trunk. It is often confused with Parkinson’s disease and dystonia. Because of stereotypes and a lack of awareness, many people with ET never seek medical care though most would benefit from treatment. Learn more about ET.

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Latest new problem -- Peripheral Neuropathy

So, last week I had a routine follow up appointment with my Neurologist with Sleep Medicine specialist. In preparation for the appointment, I had three issues that I've been having that I wanted to bring up. And, taking one of the suggestions from "Strategies & Techniques to help the Doctor help you", the last session I attended at the recent Narcolepsy Network Conference, I mentioned two of them to the nurse as I was getting settled in the exam room.

When doctor first came in, he asked a total irrelevant question, which I answered ("yes"...of course, I'm doing that as part of everything so that I can get quality sleep at night, what do you think I've been coming here for.) To which he said was good. As if its the only thing he cares about with respect to my sleep, but it wasn't. But, that's why I have a different specialist for my sleep problems...the Narcolepsy/Cataplexy dx which he didn't acknowledge in the appointment.

Then, he looked at the what the nurse had written and asked what he had me on for my tremor. I'm on Nadolol, he asked if it was 40mg. No, you have me on 20mg. Well, then you should be on 40mg. I'll write you a new script. Back when I lived in Dublin, Ohio and was seeing a Neurologist for it...he had me on 40mg of Nadolol.

Next thing I had mentioned was the tingling that I have all the time in my right leg. And, occasionally in other limbs. This led to wanting to schedule an EMG, which could either be done right away or later in the day depending on scheduling for the EMG. Well, I had taken the whole day off from work, so that wouldn't be a problem....except I had heard horror stories about how he did EMGs.

Well, there was time before the next scheduled EMG, so I was taking next door to strip and gown up for it. And, then the testing started. The shocks were tolerable at the beginning, though the conclusion was that there was significant neuropathy in my right leg. And, then he continued to shock it repeatedly as if trying to get the result to be normal or just to keep doing it, to get a reaction out of me. Then the muscle part....just flick the needle into my leg randomly, not care if he drew blood, etc. That last part was more painful. The result was normal for that at least. The next few days after that I had problem with cramping in my legs though.

The end of the visit, was to schedule a followup in a month and have me under go a whole bunch of (blood) tests, including a glucose tolerance test.

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