Category: "Sleep Apnea"

Sleep Apnea disqualifies you from being a bone marrow donor?

Somebody pointed out that having Sleep Apnea disqualifies you from joining/staying in the National Bone Marrow Registry.

Even though they say 80% of marrow donations are done using an apheresis (think plasma or platelet donations)....

The explanation is:

Patient and donor safety is our top priority. Donor guidelines are developed by our Donor and Patient Safety Monitoring Committee. The committee is made up of medical directors from NMDP donor, transplant, apheresis and collection centers, a donor and a patient.

The primary risk associated with sleep apnea is related to marrow collection, which is a surgical procedure. Registry members must be able to donate either marrow or peripheral blood stem cells, depending on the needs of the patient.

Regulating anesthesia is more difficult in patients with breathing. After surgery, marrow donors may require narcotic pain medication, which can further depress breathing. In patients with sleep apnea, even a small amount of anesthetic sedation can cause decreased airflow.

Despite the risk, some registry members express their willingness to assume the risk in order to help a patient. While the NMDP appreciates the courage and compassion that motivates them, it would be unethical for the NMDP to allow donors to do so.

To learn about other way to help patients and their families, visit http://www.marrow.org/HELP/index.html?src=tabinvolved

Of course, the explanation then raises the question of other disorders, such as narcolepsy and/or idiopathic hypersomnia....who also can respond differently to anesthetic or pain meds.

Regarding your questions about narcolepsy or idiopathic hypersomnia disqualifying a donor, it would best be considered on a case-by-case basis to determine the extent to which it affected breathing, and what impact it might have on the ability to donate.

So, there you have it...if you have sleep apnea, they tell you to go away... But, if you have some other condition of similar or greater risk...they'll let you in....because not waking up from anesthetic is okay if you keep breathing? Though one also wonders if they fully understand what sleep apnea can be?

Sleep Disorder Support Group at K-State?

Link: http://www.kstatecollegian.com/news/student-learns-to-juggle-disability-college-life-1.2210101

At some point after my diagnosis for Obstructive Sleep Apnea and my continuing problems that seemly too perfect CPAP compliance didn't solve, I wondered about the existence of a support group in town.

Eventually I found the AWAKE group, but that doesn't meet very often or regularly.

Then I started to wonder if there was or could be a support group at Kansas State University...not sure if that was before the word Narcolepsy was raised with me....

But, then the article linked above ran in the K-State Collegian...and in the comments to the article was the thought of a sleep disorder support group for K-State. So, I decided to send Megan Reynolds an email about the possible formation of such....along with a bit of my plight :)

The idea got tossed around, we talked about meeting, but neither happened before the end of the semester. And, I wasn't sure about bring it back up in the fall. But, things happened. I've been meeting people online, learning more and more about the subject, and then I was contacted via the NRG side of this site about whether there is a sleep disorder support group in the area. And, then that prompted me to bring it up again.

During the early exchange, Megan had said that she wanted to meet me....but I'm shy, so I avoided that part &#59;) But, yesterday I get a call...she's looking for me. And, I went ahead and said where my office is (co-workers commented that I shouldn't have done that :p ) But, we finally met. At least I'm pretty sure we did.

So, I finally made the trip over to Disability Support Services to make my interest known, and maybe further the possibility of the group happening. Perhaps something will come to be later this fall. Fingers crossed.

Not sure what the time frame is for me finding out why I still have most of the symptoms I had before CPAP, along with a bunch that I had forgotten that I had. That the seeming perfect resuls of being on CPAP....

I have seasonal allergies

I've known that ever since I moved to the US/midwest. Though I don't know if I would see myself moving back to Canada/southern Alberta in the near future....

But, I have always been curious as to just what I'm allergic to. Though I've never had an allergy test, the doc just prescribed some stuff...Zyrtec and Rhinocort. And, that made things tolerable.

Though Rhinocort was expensive, tier 3...high copay. So, I wasn't refilling it as often as I should. And, I was getting my Zyrtec from Canada....since it was available OTC & generic (Cetirizine) long before it was the case in the US.

Healthcare costs might be a compelling reason to move back some day. :hmm:

Then I was out of work, and then new job has different insurance (and co-insurance instead of co-pay)....plus allergies seemed different here than there. But, I stayed with Zyrtec...but hadn't pursued getting a new prescription. Plus Zyrtec is now available OTC and generic...and isn't covered by insurance anymore. Insurance won't pay for other allergy choices either....consider it a lifestyle medication.

I did Flonase for a while here there...and the newer brand version from the same company (forget the name, just recall that it was tier 3...so high co-insurance)...though more because of my breathing/OSA issues.

Anyways....now I'm seeing a specialist for sleep stuff....and he had me do an allergy test. Was surprised that it was just a blood test.

Later I got a phone call, saying yes I'm allergic to a bunch of seasonal things....take Zyrtec and Singulair.

Though I didn't get a summary letter, since I was curious as just what exactly.... So, toady I asked for a copy of the results.

For "Allergens, Zone 11": I'm allergic to Kentucky Bluegrass, Johnson Grass, Alternaria tenuis, White Oak, and Wormwood/Sagebrush.

Yay? |-|

What is Sleep Apnea?

What Is Sleep Apnea?

Sleep apnea is a common disorder in which you have one or more pauses in breathing or shallow breaths while you sleep.

Breathing pauses can last from a few seconds to minutes. They often occur 5 to 30 times or more an hour. Typically, normal breathing then starts again, sometimes with a loud snort or choking sound.

Sleep apnea usually is a chronic (ongoing) condition that disrupts your sleep 3 or more nights each week. You often move out of deep sleep and into light sleep when your breathing pauses or becomes shallow.

This results in poor sleep quality that makes you tired during the day. Sleep apnea is one of the leading causes of excessive daytime sleepiness.

Overview

Sleep apnea often goes undiagnosed. Doctors usually can't detect the condition during routine office visits. Also, there are no blood tests for the condition.

Most people who have sleep apnea don't know they have it because it only occurs during sleep. A family member and/or bed partner may first notice the signs of sleep apnea.

The most common type of sleep apnea is obstructive sleep apnea. This most often means that the airway has collapsed or is blocked during sleep. The blockage may cause shallow breathing or breathing pauses.

When you try to breathe, any air that squeezes past the blockage can cause loud snoring. Obstructive sleep apnea happens more often in people who are overweight, but it can affect anyone.

Central sleep apnea is a less common type of sleep apnea. It happens when the area of your brain that controls your breathing doesn't send the correct signals to your breathing muscles. You make no effort to breathe for brief periods.

Central sleep apnea often occurs with obstructive sleep apnea, but it can occur alone. Snoring doesn't typically happen with central sleep apnea.

Outlook

Untreated sleep apnea can:

  • Increase the risk for high blood pressure, heart attack, stroke, obesity, and diabetes
  • Increase the risk for or worsen heart failure
  • Make irregular heartbeats more likely
  • Increase the chance of having work-related or driving accidents

Lifestyle changes, mouthpieces, surgery, and/or breathing devices can successfully treat sleep apnea in many people.

Stage 1 of the Bedroom Project

Here's a picture of the little corner where I go to sleep each night is looking like now....

My Bed

Don't know if I'll feel like snapping any other parts....