Maybe Paige has Narcolepsy too...

Narcolepsy Careline


Narcolepsy patients now have somewhere to turn for assistance. Created by an organizational partnership between Jazz Pharmaceuticals and Patient Advocate Foundation, this program is designed to help all patients who need assistance when dealing with the complications of a narcolepsy condition.

If you have been diagnosed with narcolepsy, the Narcolepsy CareLine is here to help you navigate the insurance and medical world as it relates to your diagnosis. This line is staffed by caring and knowledgeable case management specialists who will work with patients and their providers to ensure better access to care, help find solutions for medical debt crisis and assist in employment related issues. Now, narcolepsy patients have a partner on their side to guide them through the complex insurance and reimbursement system, allowing them to focus on living the happy and healthy life they deserve.

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"AWAKEN" Survey Findings


"AWAKEN" Survey Finds Only 50 Percent of Americans Understand Significant Health Impact of Narcolepsy, and Many Physicians Not Comfortable Diagnosing the Sleep Disorder

Despite serious nature of narcolepsy, Americans also misperceive its severity compared to other diseases of similar health concern or prevalence

Specific findings from the AWAKEN Survey reveal:

  • Seventy percent (70%) of adults have heard of narcolepsy – the lowest percentage among a range of diseases, including diabetes, sleep apnea, Alzheimer's, Parkinson's, multiple sclerosis, schizophrenia, restless leg syndrome and cystic fibrosis.
  • Of those adults who have heard of narcolepsy, only 7% consider themselves "very or extremely knowledgeable" about the disorder.
    Similarly, only a quarter (24%) of PCPs and nearly two-thirds (62%) of sleep specialists consider themselves "very or extremely knowledgeable" about narcolepsy compared to the other diseases.
  • Even sleep specialists may not fully recognize the symptoms of narcolepsy, with only a fifth (22%) identifying all five symptoms of the disease – excessive daytime sleepiness, cataplexy (sudden loss of muscle tone), sleep paralysis, hypnagogic hallucinations and disruptive nocturnal sleep.
  • Additionally, 22% of sleep specialists report they are "not very or not at all comfortable" diagnosing narcolepsy.
  • Among PCPs and sleep specialists who see three or more narcolepsy patients a month, narcolepsy is still one of the least discussed topics compared to other sleep-related disorders – higher only than sleep paralysis. Other sleep-related conditions surveyed include insomnia, obstructive sleep apnea, excessive daytime sleepiness, restless leg syndrome/periodic limb movement disorders and hypersomnia.